"I can't believe I am writing this update Toby was doing so well however over the past few days he has been waking up with excruciating headache A scan shows that Toby's tumour has progressed We were have been told by Toby's consultant that there are no more treatment options"
https://twitter.com/tobynye4?lang=en
Sad News
posted on 14/11/18
Reading this after just putting my two healthy young boys to bed, one a little younger and one a little older than Toby.
There aren’t really words for this sort of thing as heartbreaking doesn’t do it justice. Thoughts are with Toby and his family.
posted on 14/11/18
@LiamCooper__
You are the strongest little boy I have ever met.. The way you fight should be an example to everybody, your contagious smile that lights up every room you walk into will always stick in my mind.. I love you little man
https://twitter.com/LiamCooper__/status/1062780202579824640
posted on 14/11/18
Very sad news.
posted on 14/11/18
Terrible news.
posted on 15/11/18
It’s really sh when these little kids get this.
I’m helping out a family whose 9 year old daughter died completely out of the blue from allergic reaction, they had no chance to say goodbye.
9 years old.
Sometimes all I do is just listen to them tell me stories about their daughter, it’s all you can do to help as your words mean nothing, or at least you think they do but sometimes it’s something for them to cling to, just another person so that they don’t feel alone in their feeling of being lost, if that makes sense.
posted on 15/11/18
comment by Jonty (U4614)
posted 1 hour, 51 minutes ago
It’s really sh when these little kids get this.
I’m helping out a family whose 9 year old daughter died completely out of the blue from allergic reaction, they had no chance to say goodbye.
9 years old.
Sometimes all I do is just listen to them tell me stories about their daughter, it’s all you can do to help as your words mean nothing, or at least you think they do but sometimes it’s something for them to cling to, just another person so that they don’t feel alone in their feeling of being lost, if that makes sense.
-------
well done Jonty - top man
posted on 9/12/18
Bless him. Still fighting.
_____________
Becky Worsley Cash
3 December at 20:55
So glad I was there today to witness our little man walking/running with his new frame for the first time. His strength confidence and determination shocks us every day. He makes us so proud
https://www.facebook.com/becky.worsley.16/videos/10215226128140410/?__tn__=%2CdCH-R-R&eid=ARDRV-lgFgfqHpah0mYzTBeSG0fPC-d8AdrdQjyCdptYnDoZ2X7jbiHKIRDgwOr4NM-Bhu7Dvd1tzNGt&hc_ref=ARTkDEuAD0n7-lglC5nyV7eCWQOJL3jtGpMQDz2vTY0IIve953KHFEsYjtZSgOMp7CE&fref=nf&hc_location=group
posted on 28/12/18
This is heartbreaking.
https://twitter.com/TobyNye4/status/1078411092999766016
posted on 28/12/18
so sad...
Puts it all in perspective, doesn't it!
posted on 29/12/18
It’s hard to look at the pictures, continual battle for this family.