Good luck with everything mate

Glad to hear all is well so far

You’ve got a lot of friends on here rooting for you all.

Thanks for the update RITH, all the best mate!

Good luck to your family

Great news.

Now just need to hear Jr. has rung the 🔔

For those who don't know what I mean: https://www.childrenwithcancer.org.uk/stories/the-end-of-treatment-bell/

Cheers all, he takes the news all in his stride, he trusts his mum and me to give him all the details.

Those of you with kids, do empower them to talk about their bodies, if he hadn't noticed it would never have been known.

Glenghis.. He has to ring another bell first! Due to chemo he is advised to make a deposit in a certain bank.
Told him he'd appreciate the option in later years in case something else happens defo worth the 5 mins "effort"

comment by Redinthehead - FreeGaza - فلسطين (U1860)
posted 4 hours, 28 minutes ago
Cheers all, he takes the news all in his stride, he trusts his mum and me to give him all the details.

Those of you with kids, do empower them to talk about their bodies, if he hadn't noticed it would never have been known.

Glenghis.. He has to ring another bell first! Due to chemo he is advised to make a deposit in a certain bank.
Told him he'd appreciate the option in later years in case something else happens defo worth the 5 mins "effort"
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How'd you go about bringing that up? Chuck him a copy of Razzle and a mason jar then bolt?

DH, actually had to take him the fertility side where they have a counselor and someone to talk him through it. Just left him to it so as not to embarass him.

He didnt want to talk about it afterwards of course but the hospital came back saying he managed to provide a decent enough sample that can be used for 4 rounds of IVF if he ever needs. Fack me just typing that and thinking "he's only 13"

Jnr had his first chemo treatment over the past week, learning so much about human physiology through thr stresses and strains.

Having these toxins essentially being infused through the day and night, as well as continuous hydration means he has to pee almost every two hours, which cant be in the toilet as it has to be weighed, and ph tested etc. So having to carry this warm papier mache bottle every two hours to be marked dated, timed, and weighed. Very tiring for him that, that he couldnt even bring himself to play PS4. Got him one of those travel cases with a screen and a slim PS4 in, so he could talk and play with his mates. Didnt do it till he got back home.

Throwing up in the car on the way back from hospital is something to prepare for.

He managed to watch both LFC wins so far which cheered him up somewhat, he didnt mind pushing the column of chemo and saline pumps with him, got pretty adept at it after smashing his toes first couple of times.

Literally the only thing he would go to the TCT room for
https://m.imgur.com/gallery/Dib3Jfc
Thats him with his pumps. Have to say the TCT team and organisation do a terrific job.

Had his head shaved yesterday as a pre-emptive measure to the impending hair loss, i didnt want him to wake up one day with a pillow laden with hair to make him upet.

Anything you guys want to ask about the treatment etc just ask.

Man, that’s tough for anyone, never mind a kid. And for you too, I can imagine it’s difficult being dad and not showing any emotion or worry. Hope the both of you do well through this

Cheers manfrom, hes taking it like a man really, makes it easier for his mother and I.

He said , "i dont want to be more trouble than I need to be"

Folded me in half that.

I hope posting here helps you Red

Keeping a check on your own mental and physical health is also important - for his sake and yours

comment by Redinthehead - FreeGaza - فلسطين (U1860)
posted 6 minutes ago
Cheers manfrom, hes taking it like a man really, makes it easier for his mother and I.

He said , "i dont want to be more trouble than I need to be"

Folded me in half that.
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Stay strong like the wee man.

God bless.

We all pulling for you and your family. All the very best.
Many hugs.

Proper inspiration is RITH junior, thanks for the update lad.

Comment deleted by Site Moderator

comment by Redinthehead - FreeGaza - فلسطين (U1860)
posted 10 hours, 36 minutes ago
Cheers manfrom, hes taking it like a man really, makes it easier for his mother and I.

He said , "i dont want to be more trouble than I need to be"

Folded me in half that.
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Hug him and kiss him and tell him you love him - it's the emotion that counts not whether or not its 'manly' - it's only human to shed a tear.

Love is all

Cheers all, if there are any pieces of advice (practical really) I would be glad to receive.

Comment deleted by Site Moderator

Cheers Sideshow, yep sanitiser everywhere, in his room by the front and back doors and by the kitchen sink. Never have my hands been washed so throughly.

Only place where he seems to pick up bugs is the hospital! Recent trials and tribulations was after his short chemo on Friday took him to cinema. Upon arriving he said he was cold, just after the trailers his teeth were chattering, he had a temp.
Called the hospital and they said they’d send an ambulance, told them no need as we were ten mins away and left immediately. Was in for 2 nights being infused with antibiotics.

Two days ago could see his central line had come out a bit, the stitching was visible so it had been pulled out maybe in jnrs sleep or if it wasn’t attached properly. Back to hospital, they tested it said it was ok.

He’s back into hospital Monday for his inpatient treatment. Suffering from the side effects now, skin taking a battering and his hair loss is pretty evident. Only wearing hoodies now, with the hood!

His mate came round to keep him company today, went to see his mate down on the south coast last week.
Funny story was that we stayed in a B&B I often stay at for work and his mate stayed with him.
Was telling the landlady how he is and what to watch out for and she said one of the guests had mentioned a young lad wandering around with blood coming out of his nose - for jnr that’s sepsis alert.

I took off like a shot and went to check, jnr seemed fine, and I said are you sure you didn’t have a bleed? He was adamant and I saw blood on a duvet cover, made a point of showing him at when his mate woke up. I asked about the blood and his mate said yeah I had a nose bleed last night and I went to find the bathroom (it’s ensuite) apparently in a daze jnrs mate woke up, wandered down the corridor and tried to get into someone’s room thinking it’s the bathroom!

Facking had me proper worried, rang his parents and they said yeah he gets nosebleeds sometimes. Phew,

But this bloke who complained didn’t think to ask if a lad bleeding from the face in the corridor is ok?!

Crazy, relieved, but just some of the things..

What an absolute rollercoaster it must be mate. I absolutely cannot imagine.

I wish I could offer any kind of advice other than to stay strong and stay together and look out for each other. Which obviously sounds quite pathetic and useless!

But I can say that my thoughts and I’m sure those of many, many others across these boards very much remain with you guys, and if we can will the lad better, it’ll happen!

Send you my best wishes for your amazing son and your family. Stay positive in difficult times.

Comment deleted by Site Moderator

Cheers guys

Weare it’s exactly that, whilst waiting for treatment to begin is the worst, as after diagnosis that you feel there’s this thing trying to take over your child’s body every second of every day and you can’t do anything to stop it until treatment begins.
While he looks ill now, you know he’s getting better.

I took off like a shot and went to check, jnr seemed fine, and I said are you sure you didn’t have a bleed? He was adamant and I saw blood on a duvet cover, made a point of showing him at when his mate woke up. I asked about the blood and his mate said yeah I had a nose bleed last night and I went to find the bathroom (it’s ensuite) apparently in a daze jnrs mate woke up, wandered down the corridor and tried to get into someone’s room thinking it’s the bathroom!

Facking had me proper worried, rang his parents and they said yeah he gets nosebleeds sometimes. Phew

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All the best red, stay strong.