comment by Insert random username (U10647)
posted 26 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
https://www.theguardian.com/commentisfree/2021/jun/04/tories-nhs-data-grab-pandemic
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
comment by Hector (U3606)
posted 7 hours, 9 minutes ago
comment by Insert random username (U10647)
posted 26 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
https://www.theguardian.com/commentisfree/2021/jun/04/tories-nhs-data-grab-pandemic
----------------------------------------------------------------------
This almost makes it look like you are Marina Hyde
comment by rosso - time to #takefootballback (U17054)
posted about 7 hours ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Yeah, I'm absolutely against this tbh. That data is there to support our health and well being, not to help develop products or target them
I consider it a gross misuse
https://www.theguardian.com/world/2021/jun/05/cost-of-policing-g7-summit-estimated-at-70m
Cost of policing the G7.
£70Million
They need to sell another 140 seats in the House of Lords then... 👍
Alysia Alexandra #SaveSheikhJarrah @AlysiaAlexndra
Denmark has stripped the residency of a Syrian woman, while her husband and newborn baby may stay. Her baby is 10 days old. 10 DAYS OLD
Tory Denmark
comment by Constantinople (U11781)
posted 10 minutes ago
Alysia Alexandra #SaveSheikhJarrah @AlysiaAlexndra
Denmark has stripped the residency of a Syrian woman, while her husband and newborn baby may stay. Her baby is 10 days old. 10 DAYS OLD
Tory Denmark
----------------------------------------------------------------------
How vile.
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
comment by Admin1 (U1)
posted 41 seconds ago
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
----------------------------------------------------------------------
You opting out then, Adders?
I’ve got a mate who works for NHS Digital. I’ve sent him a message asking him to explain why I shouldn’t opt out. If I can, I’ll post his reply up here.
comment by rosso - time to #takefootballback (U17054)
posted 5 minutes ago
comment by Admin1 (U1)
posted 41 seconds ago
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
----------------------------------------------------------------------
You opting out then, Adders?
I’ve got a mate who works for NHS Digital. I’ve sent him a message asking him to explain why I shouldn’t opt out. If I can, I’ll post his reply up here.
----------------------------------------------------------------------
No. In recent years I was involved in an AI start-up detecting the big C. I've also had multiple shonky blood tests, without root cause. The potential for huge bug data breakthroughs are massive, vs overworked interested GPs who have had the desire of diagnostic investigation worked out of them.
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
comment by Admin1 (U1)
posted 17 minutes ago
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
----------------------------------------------------------------------
Define ‘truly anonymous’.
comment by rosso - time to #takefootballback (U17054)
posted 20 minutes ago
comment by Admin1 (U1)
posted 17 minutes ago
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
----------------------------------------------------------------------
Define ‘truly anonymous’.
----------------------------------------------------------------------
For example, blood work data values(value and reading)and subsequent mortality stats. When I was ten I was attacked by two doberman dogs, bit on the spine. One dog had lukemia. Most of my friends know this story. It is probably in my medical records too. If my records were anonymised and data open but contained that story, I'd be pretty easy to fingerprint. So if I then theoretically had a visit to doc for say STD tests after a visit to a "sauna", I'd have a fair bit explaining to do.
A perfect example of what I mean. Part of the reason I’m concerned about the data ending up with pharma companies.
What *exact* controls are there on their use of the data? Are there termination/ ‘return’ clauses? Are there protections against the establishment of sunset legislation/ precedents? What happens in the case of ‘leaks’? What kind of matching work might they be able to do?
Say the data is requested, and access granted, for the (ostensible) purposes of examining, say, long term side-effects of an existing drug chemically related to a new pharmaceutical. What’s there that’ll ensure that months later patients aren’t seeing targeted ads for the latest statins based on their medical history x data acquired from Facebook/Google/Amazon/any combination of 1,000 other sources.
Nice bit of racism in the crappy tabloids to start the day, imagine thinking Didsbury is an ‘Asian infested’ area
https://twitter.com/sundersays/status/1401252574578233354?s=21
Sajid Javid @SajidJavid
For 8 years the UK has been battling for a global agreement on tax to get multinationals to pay their fair share.
Today, thanks to @RishiSunak, our leadership of the G7, and a new US administration, we finally have one. Fantastic work.
Also Sajid Javid voted against the Finance Bill, May 24, 2021. Now he’s shamelessly celebrating it.
https://votes.parliament.uk/Votes/Commons/Division/1031#noes
Ahhh, nice little break away at the coast with no internet
Rosso agree completely with what you have written regarding the use of data, also interesting insight from your friend.
I appreciate the greater good that could come from the data sharing, I'm just not sure I agree with the use of it.
I'd agree with NHS statisticians using it and sharing specific data points completely anonymised
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
comment by Insert random username (U10647)
posted 9 hours, 32 minutes ago
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
----------------------------------------------------------------------
So what do we do? Stay locked in our homes forever?
comment by Automatic For The People #BLM (U21889)
posted 2 hours, 48 minutes ago
comment by Insert random username (U10647)
posted 9 hours, 32 minutes ago
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
----------------------------------------------------------------------
So what do we do? Stay locked in our homes forever?
----------------------------------------------------------------------
The current rules don't have us "Locked in our homes forever"?
No rules have at all, we haven't had lockdowns like we saw across Asia, with people forced to stay at home, we have always been able to leave the house and mix in various forms, meet in gardens, now in homes and pubs and restaurants etc with decent spacing and masks when moving around.
I wouldn't say at all that current restrictions (or a few we have lost) are restrictive if they save people's lives, or stop this ridiculous boom and bust of harsh winter lockdowns they are predicting.
Personally I'd rather not see another 100k dead, so let's just be facking sensible and keep some of the distancing in until everyone is vaccinated and they start rolling out the variant boosters to some of the most vulnerable.
Seychelles, Manaus.. we just aren't learning the lessons
There is even a fairly solid argument for keeping restrictions until her immunity has been met.
It hasn't been met even for the first strain. For a 97% effective vaccine you would need to inject 69% of your population, we haven't done that yet, so there is no reason to think this thing is in the bag
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Current Events
Page 35 of 121
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posted on 4/6/21
comment by Insert random username (U10647)
posted 26 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
https://www.theguardian.com/commentisfree/2021/jun/04/tories-nhs-data-grab-pandemic
posted on 4/6/21
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
posted on 5/6/21
comment by Hector (U3606)
posted 7 hours, 9 minutes ago
comment by Insert random username (U10647)
posted 26 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
https://www.theguardian.com/commentisfree/2021/jun/04/tories-nhs-data-grab-pandemic
----------------------------------------------------------------------
This almost makes it look like you are Marina Hyde
posted on 5/6/21
comment by rosso - time to #takefootballback (U17054)
posted about 7 hours ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Yeah, I'm absolutely against this tbh. That data is there to support our health and well being, not to help develop products or target them
I consider it a gross misuse
posted on 5/6/21
https://www.theguardian.com/world/2021/jun/05/cost-of-policing-g7-summit-estimated-at-70m
Cost of policing the G7.
£70Million
posted on 5/6/21
They need to sell another 140 seats in the House of Lords then... 👍
posted on 5/6/21
Alysia Alexandra #SaveSheikhJarrah @AlysiaAlexndra
Denmark has stripped the residency of a Syrian woman, while her husband and newborn baby may stay. Her baby is 10 days old. 10 DAYS OLD
Tory Denmark
posted on 5/6/21
comment by Constantinople (U11781)
posted 10 minutes ago
Alysia Alexandra #SaveSheikhJarrah @AlysiaAlexndra
Denmark has stripped the residency of a Syrian woman, while her husband and newborn baby may stay. Her baby is 10 days old. 10 DAYS OLD
Tory Denmark
----------------------------------------------------------------------
How vile.
posted on 5/6/21
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
posted on 5/6/21
comment by Admin1 (U1)
posted 41 seconds ago
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
----------------------------------------------------------------------
You opting out then, Adders?
I’ve got a mate who works for NHS Digital. I’ve sent him a message asking him to explain why I shouldn’t opt out. If I can, I’ll post his reply up here.
posted on 5/6/21
comment by rosso - time to #takefootballback (U17054)
posted 5 minutes ago
comment by Admin1 (U1)
posted 41 seconds ago
comment by rosso - time to #takefootballback (U17054)
posted 18 hours, 52 minutes ago
comment by Insert random username (U10647)
posted 36 minutes ago
What's everyones feelings on the NHS data grab?
----------------------------------------------------------------------
NHS Digital apparently going out of their way to ensure that they complete undermine public faith in their own organisation.
De-anonymisation of personal medical data, which the programme will allow, under any circumstances is an absolute red line for me, and I’m opting out.
----------------------------------------------------------------------
Remember when AOL anonymised 500m search histories. Total car crash.
----------------------------------------------------------------------
You opting out then, Adders?
I’ve got a mate who works for NHS Digital. I’ve sent him a message asking him to explain why I shouldn’t opt out. If I can, I’ll post his reply up here.
----------------------------------------------------------------------
No. In recent years I was involved in an AI start-up detecting the big C. I've also had multiple shonky blood tests, without root cause. The potential for huge bug data breakthroughs are massive, vs overworked interested GPs who have had the desire of diagnostic investigation worked out of them.
posted on 5/6/21
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
posted on 5/6/21
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
posted on 5/6/21
comment by Admin1 (U1)
posted 17 minutes ago
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
----------------------------------------------------------------------
Define ‘truly anonymous’.
posted on 5/6/21
comment by rosso - time to #takefootballback (U17054)
posted 20 minutes ago
comment by Admin1 (U1)
posted 17 minutes ago
comment by rosso - time to #takefootballback (U17054)
posted 1 hour, 19 minutes ago
Here’s what he wrote, with some minor edits:
“It comes down to trust and you'd think lessons would have been learned from care.data debacle.
...every single individual working with data is probably overcautious with how we use it. The pandemic has changed things and we've had legal power to do a lot. That power is (rightly) ending soon.
...If I were in charge I'd have a longer, better consultation period. I'd also just say we will not share with anyone except [explicitly named organisations].
The conversation with GPs was going well, but this has blown up spectacularly, so something has gone awry somewhere in that area.
...Just need to be really really clear about the purpose for the data. There's not a mature conversation with the public about data.
Also, NHSD are being somewhat scapegoats here. We're directed to collect data; we don't have full control over the comms, circumstances, or timings.”
I think that last para is telling, and it’s part of the reason I’m - and I think the public should be - so hesitant.
I’ve told him that I’d trust the people he’d choose to work with, and, largely, I trust the civil service. I do not facking trust the bunch of variously deleterious, vested and corrupt, and otherwise disinterested and incompetent shower currently in government, for scores of distinct reasons.
Bottom line is that that data should be properly anonymised in irreversible fashion, and the organisations it will be shared with should be listed and justified in detail.
----------------------------------------------------------------------
If it's truly anonymous it should be public and open data.
----------------------------------------------------------------------
Define ‘truly anonymous’.
----------------------------------------------------------------------
For example, blood work data values(value and reading)and subsequent mortality stats. When I was ten I was attacked by two doberman dogs, bit on the spine. One dog had lukemia. Most of my friends know this story. It is probably in my medical records too. If my records were anonymised and data open but contained that story, I'd be pretty easy to fingerprint. So if I then theoretically had a visit to doc for say STD tests after a visit to a "sauna", I'd have a fair bit explaining to do.
posted on 5/6/21
A perfect example of what I mean. Part of the reason I’m concerned about the data ending up with pharma companies.
What *exact* controls are there on their use of the data? Are there termination/ ‘return’ clauses? Are there protections against the establishment of sunset legislation/ precedents? What happens in the case of ‘leaks’? What kind of matching work might they be able to do?
Say the data is requested, and access granted, for the (ostensible) purposes of examining, say, long term side-effects of an existing drug chemically related to a new pharmaceutical. What’s there that’ll ensure that months later patients aren’t seeing targeted ads for the latest statins based on their medical history x data acquired from Facebook/Google/Amazon/any combination of 1,000 other sources.
posted on 6/6/21
Nice bit of racism in the crappy tabloids to start the day, imagine thinking Didsbury is an ‘Asian infested’ area
https://twitter.com/sundersays/status/1401252574578233354?s=21
posted on 6/6/21
Sajid Javid @SajidJavid
For 8 years the UK has been battling for a global agreement on tax to get multinationals to pay their fair share.
Today, thanks to @RishiSunak, our leadership of the G7, and a new US administration, we finally have one. Fantastic work.
Also Sajid Javid voted against the Finance Bill, May 24, 2021. Now he’s shamelessly celebrating it.
https://votes.parliament.uk/Votes/Commons/Division/1031#noes
posted on 6/6/21
Ahhh, nice little break away at the coast with no internet
Rosso agree completely with what you have written regarding the use of data, also interesting insight from your friend.
I appreciate the greater good that could come from the data sharing, I'm just not sure I agree with the use of it.
I'd agree with NHS statisticians using it and sharing specific data points completely anonymised
posted on 6/6/21
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
posted on 6/6/21
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
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They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
posted on 6/6/21
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
posted on 7/6/21
comment by Insert random username (U10647)
posted 9 hours, 32 minutes ago
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
----------------------------------------------------------------------
So what do we do? Stay locked in our homes forever?
posted on 7/6/21
comment by Automatic For The People #BLM (U21889)
posted 2 hours, 48 minutes ago
comment by Insert random username (U10647)
posted 9 hours, 32 minutes ago
comment by Automatic For The People #BLM (U21889)
posted 1 hour, 24 minutes ago
comment by Insert random username (U10647)
posted 1 hour, 1 minute ago
But I really don't know enough about it if I'm being honest. I'll have to do some further reading.
Covid cases not looking good either.. liftoff for third wave..
----------------------------------------------------------------------
They’ll be looking at hospitalisations and deaths, not new infections. I think they should probably stick to June 21st, the travel and hospitality industries can’t take much more of this.
Just work flat out to get everyone double jabbed.
----------------------------------------------------------------------
Double jabbed doesnt matter a jot if the virus is evolving around it
----------------------------------------------------------------------
So what do we do? Stay locked in our homes forever?
----------------------------------------------------------------------
The current rules don't have us "Locked in our homes forever"?
No rules have at all, we haven't had lockdowns like we saw across Asia, with people forced to stay at home, we have always been able to leave the house and mix in various forms, meet in gardens, now in homes and pubs and restaurants etc with decent spacing and masks when moving around.
I wouldn't say at all that current restrictions (or a few we have lost) are restrictive if they save people's lives, or stop this ridiculous boom and bust of harsh winter lockdowns they are predicting.
Personally I'd rather not see another 100k dead, so let's just be facking sensible and keep some of the distancing in until everyone is vaccinated and they start rolling out the variant boosters to some of the most vulnerable.
Seychelles, Manaus.. we just aren't learning the lessons
posted on 7/6/21
There is even a fairly solid argument for keeping restrictions until her immunity has been met.
It hasn't been met even for the first strain. For a 97% effective vaccine you would need to inject 69% of your population, we haven't done that yet, so there is no reason to think this thing is in the bag
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