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Treatment for MND

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posted on 11/8/22

Awful disease is this. Kevin Sinfield has raised millions for his friend Rob Burrows. Sadly this treatment might be too late for him.

posted on 11/8/22

Uncle diagnosed with it this year. Another rugby player was last week also. Seems to affect strong physical blokes in there 30-50's.

posted on 11/8/22

Horrific disease,I have an HR colleague in her late 30's whose recently been diagnosed

comment by Radical (U8691)

posted on 11/8/22

My uncle died of this, diagnosed in late 50s. It's awful.

comment by Silver (U6112)

posted on 11/8/22

Mrs Silver is on the board of an MND charity on basis that Silver jnr is a centre-back and higher risk of it. Understand, give something back, exorcise the guilt...

posted on 11/8/22

I only found out recently that one in every 300-400 people will be diagnosed with MND at some stage during their life time. That's far more common than I was aware of.

Horrible disease

posted on 11/8/22

Always support the Darbyrimmer MND charity

posted on 11/8/22

My sister died of it last year. She was 74 and only ived four months after the diagnosis. It was awful.

comment by Jonty (U4614)

posted on 12/8/22

Am so sorry to hear some of these stories, such a wicked disease.

posted on 13/8/22

Took my father-in-law last year. A cruel, horrific disease.

As a Leeds fan another notable victim was Marius Zaliukas who died of it at the age of 36.

posted on 13/8/22

comment by White as Snow (U22893)
posted 5 hours, 23 minutes ago
Took my father-in-law last year. A cruel, horrific disease.

As a Leeds fan another notable victim was Marius Zaliukas who died of it at the age of 36.
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That is very young and obviously extremely sad, some people like Ronnie Corbett and David Niven are only diagnosed at the end of long fulfilling life, others seem to live for a long time post diagnosis trapped in their own bodies, I am not sure I would like to live like Stephen Hawking did for year on year.
I note there is a lady who ultimately ended her own life called Sue Rodriguez who is listed as a Canadian right to die activist, personally I think it is immoral that the Government doesn't allow us the right to a dignified and pain free death.
There is a significantly higher proportion of male victims of this disease than female, is this because you are much more likely to contract it if you are male or an indication of the sexism in the health service or a indicator that fame is much easier to attain if you are male I wonder?

comment by Jonty (U4614)

posted on 13/8/22

comment by Elsbels - El Jugador (U21658)
posted 5 hours, 57 minutes ago
comment by White as Snow (U22893)
posted 5 hours, 23 minutes ago
Took my father-in-law last year. A cruel, horrific disease.

As a Leeds fan another notable victim was Marius Zaliukas who died of it at the age of 36.
----------------------------------------------------------------------
That is very young and obviously extremely sad, some people like Ronnie Corbett and David Niven are only diagnosed at the end of long fulfilling life, others seem to live for a long time post diagnosis trapped in their own bodies, I am not sure I would like to live like Stephen Hawking did for year on year.
I note there is a lady who ultimately ended her own life called Sue Rodriguez who is listed as a Canadian right to die activist, personally I think it is immoral that the Government doesn't allow us the right to a dignified and pain free death.
There is a significantly higher proportion of male victims of this disease than female, is this because you are much more likely to contract it if you are male or an indication of the sexism in the health service or a indicator that fame is much easier to attain if you are male I wonder?
----------------------------------------------------------------------
Agree on right to die, give people the chance for dignity and self determination instead of forcing them to be horrifcally trapped.

comment by Jonty (U4614)

posted on 15/8/22

RIP Lee Johnrose....52, it's no age

https://www.bbc.co.uk/sport/football/62554312

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